The Journal of a Disappointed Man: & A Last Diary
by W.N.P. Barbellion
ISBN 13: 978-0486817392
Book description

Published shortly before the author's death in 1919, The Journal of a Disappointed Man presents a remarkable memoir that addresses struggles with poverty, inadequate education, and the creeping paralysis of multiple sclerosis. Yet author W. N. P. Barbellion manages to write with uplifting eloquence and passion of his love for family, natural history, music, and literature. Told with a thoroughly modern voice, the unjustly overlooked Journal is reprinted here with its posthumous successor, A Last Diary. This edition features a thoughtful Introduction by H. G. Wells, who writes of the book's "exquisite beauty." W. N. P. Barbellion (1889–1919), whose real name was Bruce Frederick Cummings, was a naturalist who worked in the Entomology Department of London's Natural History Museum. Upon attempting to enlist in the British Army during World War I, he was diagnosed with multiple sclerosis. The discovery of his disease intensified the tenor of his journal-keeping, and his frank and articulate reflections on coping with a fatal illness remain a powerful testament to his life and struggles.


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Long Covid and the Blind Spots of American Medicine
One of the most frightening, least understood aspects of the coronavirus pandemic is what’s come to be known as “long Covid.” Stories abound of young, healthy adults who experienced mild or asymptomatic coronavirus infections and recovered fairly quickly, only to experience an onset of debilitating symptoms weeks or even months later. One major study of almost two million Covid patients in the United States found that nearly a quarter sought medical treatment for new conditions one month or more after their initial infection. Scientists still don’t fully understand what’s causing long Covid or how to best treat it. But in that sense, long Covid isn’t all that novel. Today, millions of Americans suffer from chronic illnesses set off by the body’s response to infections. Many of these conditions routinely go undiagnosed or are misdiagnosed. And even those who find their conditions identified correctly often struggle to find treatments that work for them. “To have a poorly understood disease,” writes Meghan O’Rourke, “is to be brought up against every flaw in the U.S. health care system; to collide with the structural problems of a late-capitalist society that values productivity more than health; and to confront the philosophical problem of conveying an experience that lacks an accepted framework.” O’Rourke, an award-winning journalist and poet and the editor of The Yale Review, has spent more than a decade of her life struggling with chronic illness, a journey she documents in her forthcoming book, “The Invisible Kingdom: Reimagining Chronic Illness.” In it, O’Rourke uses her experience to illuminate the facets of American society that often remain invisible to the rest of us: the blind spots in our scientific and medical paradigms, the shortcomings of our individualistic ethos, the way economic inequalities show up in our bodies, our culture’s tendency to pathologize suffering. So this conversation begins with long Covid and the debates surrounding it, which O’Rourke has done excellent reporting and writing on. But it is also about what it’s like to experience America’s hidden chronic illness epidemic firsthand, and what that epidemic reveals about the society that too often pretends it doesn’t exist.
Meghan O'Rourke Oct. 26, 2021 3 books recommended
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by @zachbellay